Project Background
Participants in clinical trials and other research projects do not always receive information on aggregated study results. We were asked by a medical anthropologist to use our storytelling approach to communicate research findings to families who participated in one of the studies from the Clinical Sequencing Evidence-Generating Research (CSER) consortium.
Client: UCSF Program in Prenatal and Pediatric Genomic Sequencing
Our Work
We produced a comic book to reflect the experience of participating families, based on interviews and aggregated study results. Our story follows a fictional mother, Melena, whose child, Victoria, has a developmental issue affecting her ability to walk and speak. Like many parents, Melena receives uncertain results from her child’s genetic test and must figure out how to navigate the future.
Page 1 from “Forecast for the Future”
Page 5 from “Forecast for the Future”
Results
English and Spanish language versions of the comic book are being distributed to study participants.
